The Incident: A Not-So-Model Diabetes Patient (or “Grandma Got Run Over by a Wheelchair”)

marioandretticarIt all started innocently enough. The hospital nurses gave me a model car to put together, probably to keep me in my bed rather than romping through the hospital hallways with the other kids on the children’s floor. This was back in 1971, and hospitals were not yet in the practice of moving patients out as soon as possible.

I had just been diagnosed with type 1 diabetes and admitted to Good Sam hospital (see my earlier post on my hospital adventure). I had made new friends with kids who had cancer and heart conditions, as well as those who had had numerous surgeries to correct birth defects, just to name a few of their conditions. One of my roommates, a young kid who had a serious heart condition, was taken to surgery one evening, and he never returned. One of my other roommates woke me and the kid next to me up with screams in the middle of the night and then cried inconsolably the rest of the night. He said he knew our friend had died. I thought he was crazy until the following day when a nurse told us that indeed he didn’t make it through the surgery. No one was there to console us or provide us with counseling.

Maybe that’s why my fellow children’s-floor friends and I were so out of control. I’m sure we simply didn’t know how to handle all we saw and were experiencing.

It all culminated when I ran over a little old lady in the hallway. One of the big kids (and by big, I mean he was maybe 13) was pushing me in a wheelchair through the halls. I was Mario Andretti, speeding around the Good Samaritan 500 Racetrack. The other race teams had already given up. We were the undisputed 4th-Floor Wheelchair Race Champions. What I didn’t realize was that at some point the kid pushing me had given me a big shove and then let go. An older woman stepped out of a room directly in my path, and I suddenly found I had a very unwilling passenger.

She could have just enjoyed the ride, but instead she had to make a big deal out of the incident. (Incident was the word the nurses and hospital administrators kept using.)

So suddenly I had a model Lotus racecar to put together, which was kind of fun for a short while. But the tires had a piece of rubber that needed to be cut away in order to attach them to the rims. I asked a nurse for scissors, and she complied, probably to keep me busy and out of trouble. As I poked out the stubborn rubber section of a tire, however, I plunged the scissors between my index and middle fingers (I still have the 42-year-old scar). Seven stitches and I was good to go, sans the scissors.

Several days later I was in isolation, away from all my fun friends, with a serious case of Staphylococcus. It was the worst. No more races, no more friends to play with; they didn’t even let me finish building my model car. Finally, the doctor let me go home, where I carefully finished assembling the Lotus.

Several weeks later, my doctor removed six stitches from between my fingers. One of the stitches somehow fell down into my hand. He wanted to send me back to the hospital to let them find and remove that lost stitch, but the hospital said no, ostensibly because he could take care of that in his office.

That was fine with me. The kids back in my neighborhood and I had sled races to run and a new model car to pommel with a BB gun.

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MORE STORIES ABOUT BEING A KID WITH DIABETES

Living Healthy with Diabetes and Proving the Doctors Wrong

How NOT to Teach an 11-Year-Old Boy to Give Himself a Shot

Camp Hamwi and THE Shot

The Year I Was Banned from the Olympic Games

The Year I Was Banned from the Olympic Games

Image1972 was a big year for me–the year of the Olympic Games, and I was participating.

I was 12 years old and won 27 gold medals. At least I should have.

The other competitors, Tim Ward, age 11, and Jeff Ward, age 10, competed too. The events all took place in my backyard, garage, basement, and around our neighborhood on Matson Avenue. I designed and crafted each of the gold, silver, and bronze medals by cutting pieces of cardboard into circles, coloring them with the appropriate crayons, punching small holes in the tops, and looping pieces of string through the holes. I draped all the medals on one of my dad’s ladders that hung in our garage. As each event concluded, the top three athletes met in the garage and stood atop boxes at different levels to receive our cardboard medals. I played the National Anthem on my cassette player.

It’s true. I had a decided advantage over Tim and Jeff because of my superior athletic skills. The fact that I planned all the events helped too.

There were the usual events, such as weight lifting, 100-yard dash, marathon (once around the block), cycling (I was the only one with a 10-speed), high jump (using all of the pillows and cushions in the house as a landing mat), and discus throw (amazingly, we broke only one of mom’s plates). Then we had some “unconventional” events. These were sports I was particularly good at or ones I knew Tim and Jeff couldn’t do well. Like chess. Air hockey. Bumper pool. (I had an air hockey and bumper pool table in my bedroom). Algebra (the Ward brothers hadn’t gotten that far in math yet). Against Tim’s protests, we didn’t have the football or baseball throw. Tim was a pitcher and could throw a ball a mile. I did give in to the one-on-one basketball tournament and because of it I got my one silver medal.

About a week into the competition, I couldn’t be caught in the medal race. Tim had a bunch of silver medals and Jeff had a ton of bronze. This is when “the scandal” began. Jeff said I had to submit to drug testing. He claimed he had incontrovertible evidence that I had been shooting up.

He was right. I took insulin shots twice a day. I had been diagnosed with Type-1 diabetes a year earlier. Jeff said he and Tim had all the evidence necessary to prove I had an unfair advantage because of the “performance-enhancing drugs” I was taking. They had seen me taking shots, they had found broken syringes in our garbage can, and noticed my markedly improved performance after eating what looked like sugar cubes.

The urine samples I was forced to provide were unnecessary. My diabetes was no secret–I had told them about it so they could understand why I sometimes had to stop playing to eat some sugar. I tried as hard as I could to convince the Ward brothers that insulin wasn’t a drug and that it gave me no advantage in our competitions. I showed them the pamphlets I had received from the hospital. I had my mom testify on my behalf. I provided an official statement from my doctor. The Ward brothers weren’t convinced. It was put to a vote; I lost two to one. I was suspended for life from the Matson Avenue Olympic Games and stripped of all my medals.

I was devastated. For about two days, when baseball season started and my Little League team allowed me to play. In my first at bat, I hit a line drive up the middle, knocking Tim to the ground. I laughed when I reached first base, where I promptly ate a sugar cube and stole second base.

Camp Hamwi and THE Shot

Relying on your mom to give you your insulin injections has its disadvantages, especially when she’s mad at you and hasn’t taken (what she called) her “nerve pills.” Like the time when I was 13 and I got mud on her freshly cleaned kitchen floor, and later when she gave me my shot, she wiggled and twisted the needle around in my arm before pushing in the insulin. She swore her hands were slippery from floor wax, but I knew better.

As I indicated in my last post, it took me a while before I learned to give myself my own insulin injection. I really wanted to do it myself, but I couldn’t pull the trigger, so to speak. You see, the nurses in the hospital taught me to JAB the needle into my skin. It was like throwing a dart, except you don’t let go. I tried over and over: 1 … 2 … 3 … and every time my JAB would stop just short of my skin. So Mom would graciously give me my shot … again, and I’d try again next time.

This went on for a couple years, until I went to Camp Hamwi.

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Postcard home from Camp Hamwi, Central Ohio, circa early 1970s

Camp Hamwi was the diabetes camp I attended for three years. It was a typical summer camp with cabins, a swimming pool, and a creepy camp counselor named Al. The camp was for juvenile diabetics but it included pretty normal camp activities: kayaking in the lake, hikes in the woods, and late-night spin-the-bottle games. Of course, I and my other 13- and 14-year-old cabin mates got to sleep by singing the classic camp song, “99 Bottles of Beer on the Wall.” The camp counselors taught us about testing regularly, eating right, and getting enough exercise each day. They must have forgotten the warning about how bad it is for juvenile diabetics to drink that much beer.

Each day, I saw all my fellow campers giving themselves their shots, which gave me motivation, but it was HOW they were putting the needle in that helped me most. They didn’t JAB; they simply put the end of the needle against the skin and gave it a little push. So I tried it and … success!

I was so excited I wrote a letter home to my family:

Dear Mom & Dad,

Finally for the FIRST time ever, I gave my self my own shot and nobody helped me! I just stuck it in. Having a GREEEEAAAAAT time here and learning a lot.

Have to be saying bye till Saturday unless you decide not to pick me up. Maybe that’s better, but I HOPE not!

Bye! Mike

(NOTE: Thirty years later: After my mom passed away in 2001, my siblings and I were going through her keepsakes, and I found the letter. Mom had kept it all those years.)

The camp counselors rewarded me for giving my own shot by putting me in charge of the bonfire that night. They rebuilt the camp the following year, but Al has never been seen since that night.

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NOTE: The events of this post are based on true events, although some minor details have been fictionalized. Camp Hamwi was a great place with no creepy counselors or underaged drinking, so go ahead and send your kids there. I’m sure they’ll love it. By the way, I now wear a pod but when I do give myself a shot I still do it as I learned at camp. Also, I still enjoy bonfires and playing spin the bottle, but I now do the latter only with my wife.

Support me in my ride to beat diabetes in the 2015 TdC here!

Support me in my ride to beat diabetes in the 2015 TdC here!

How NOT to Teach an 11-Year-Old Boy to Give Himself a Shot

Mike_11ishI could give a shot to an orange, a grapefruit, and a nurse, but I couldn’t inject myself.

I was 11 years old and had just been diagnosed with Type-1 diabetes. I spent the next three weeks in the hospital, where the nurses schemed to teach me to give my own shot. After three weeks of trickery, deceit, and blackmail, they finally gave up on me and told my parents to take me home for Christmas. I saw one of them slip my mom a $100 bill.

First they tried to model how easy it is to give oneself a shot. One-by-one, each of the nurses came into my room and stuck a hypodermic needle in her arm, and then told me I could do it as well. I began to really enjoy this daily game. I asked them to send in my older sister and my sixth-grade math teacher.

Then they attempted reverse psychology: I was to give one of them—the young, wide-eyed, just-out-of-nursing-school neophyte—a shot of saline solution. The idea was that if I could give someone else a shot, I could give one to myself. Really? I was a preadolescent boy. It didn’t hurt me to put that needle in her arm, but I could tell by her expression that it hurt her. She didn’t think it was as funny as I did.

Then they pulled out the big guns: No dessert if I didn’t give myself my shot. But my 9-year-old roommate had just had surgery on both feet, so when everyone left, I took his dessert. I knew he’d never catch me.

Eventually, I was able to give myself my own shot, but I’ll save that for another post. In the meanwhile I did learn quite a bit from my experience. For instance, when you inject an orange with enough saline solution, it becomes a little water bomb—perfect for terrorizing your roommate and your older sister.

 

Living Healthy with Diabetes and Proving the Doctors Wrong

When I was diagnosed with type 1 diabetes at age 11, Doctor Stagaman told my mom I probably wouldn’t live past 40 and definitely not past 50. He also told her there was a good chance I wouldn’t be able to have children.

I don’t know what it is about me, but I really, really enjoy proving doctors wrong!

I have had an intimate relationship with diabetes for nearly 43 years. I’ve seen diabetes care progress greatly over the years, but it’s just that, care for diabetes so that I can stay relatively healthy and live longer. But there is still no cure.

clinitest1When I was first diagnosed, several times a day I used Clinitest tablets (which have nothing to do with an ex-president) that I would utilize to test my urine. I felt like a chemist, using a dropper to put just the precise amount of urine into the test tube,  placing the tablet into the tube, and then watching it  fizz and change colors. This was fun for about a week; then it became cumbersome, and it was a very inaccurate way of determining my blood-glucose level. (Basically, testing your urine tells you what your blood-glucose level was several hours ago.) Today I can test my blood in 3 seconds and I know it’s accurate, which means I can control my diabetes better.

While I appreciate better diabetes care today, a cure would dramatically change my future and the future of my friends with diabetes. I don’t really want this disease or the complications. Today, I have some retinopathy in my eyes and a bit of nerve damage, but I can live with these things. Yet I’m seeing people I know and care about dealing with complications such as blindness, amputations, kidney disease, and even death. That’s why I’m doing everything I can, short of sin, to raise money to beat diabetes.

This may sound odd to some, but I am thankful for diabetes. Why? For one thing, I am very conscientious about my health, diet, and exercise. I’m now 53 years old and I want to see my four children–in your face, Dr. Stagaman!–get married and have kids of their own. I want to keep living healthy through all the highs and lows of life for as long as I can.